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General care settings

In this section we would like to know more about the care settings in your facility

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What specialist or service is part of the patient care setting at your clinic?

Internal/ Team member/
Joint clinics 		External referral*Not availableDon't know
(Neuro-) Pediatrician:
Neurologist:
Pulmonologist:
Cardiologist:
Radiologist:
Nuclear medicine specialist:
Psychiatrist:
Orthopedic surgeon:
Genetic counseling:
Social worker:
Orthotist:
Psychologist:
Physiotherapist:
Occupational therapist:
Speech/language therapist:
Care coordinator:
Endocrinologist:
* A specialist is available, but not in the same institution.

What kind of arrangement for transition from pediatric to adult care do you have in your clinic?


What kind of pulmonary function test is available at your clinic?


What kind of test for heart function is available at your clinic?


What kinds of test for muscle and bone health are available at your clinic?


What kind of facilities and equipment for physical therapy are available at your clinic?


Does your site perform skeletal muscle biopsies?

If yes, how many biopsies on average anually:
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